frank reyerse data base

Connecting HSP, PLS and ALS patient's world-wide

Add Your Name

Use this form to submit your name or the name of someone you know. Applicants must have a diagnosis of either HSP, PLS, or ALS. All information provided in this form will remain confidential except for first name, state/province, and country.

All fields are optional. Fields with a color background are considered public and can be displayed on this site. Completing this form with an email address will allow us to provide you with regular updates on our progress to fund research.


first name
last name
street address
state/province post/zip code
year of birth
year onset symptoms
your photo (public)
public comments
private comments

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Useful Links

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Terms and Privacy

This data base is for the private use by individuals with PLS/HSP/ALS and their care givers. Any other use is illegal. All information collected on this site is private and is never shared.