frank reyerse data base

Connecting HSP, PLS and ALS patient's world-wide


This site is for individuals diagnosed with Primary Lateral Sclerosis (PLS), Hereditary Spastic Paraplegia (HSP), or Amyotrophic Lateral Sclerosis (ALS). It is designed to Find People, Connect and Share experiences.

Find People

Use the search bar above or the navigation links on the right to locate people in your country, state or province.


You can connect with any member of this data base that has enabled contact. If they have, you will see a (contact) link. By clicking on this link, you can send them a private note. Members can choose to receive, respond, or block messages.


This site is sponsored by the Spastic Paraplegia Foundation (or SPF). The SPF both sponsors and encourages local meetings where individuals can share experiences. We welcome anyone who has or cares for someone with these conditions to join us at a local meeting.

The Spastic Paraplegia Foundation also sponsors very important TeamWalks where members can help promote and fund research through local fund raising. For additional information on Team Walks contact Linda Gentner, linda.gentner@sp-foundation.org

Find in data base

Useful Links

North America Map Search

World Map Search

Terms and Privacy

This data base is for the private use by individuals with PLS/HSP/ALS and their care givers. Any other use is illegal. All information collected on this site is private and is never shared.